PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,027 posts

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•1 day ago

62 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•3 days ago

63 Replies

New & Confused with GCA

Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank,...

Hello, I’m asking for help and advice as the wife (and carer) for my husband who...

Hidden

•20 days ago

158 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•3 days ago

57 Replies

Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•21 hours ago

28 Replies

More Challenges to Overcome!

Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker...

Some of you may recall that for some years, I've frequently experienced ectopic ...

Kendrew

•19 days ago

129 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•2 days ago

36 Replies

Please vote for us to win £5,000!

Hi everyone, there is a limited-time draw running for us to be in with a chance of winning £5,000. Please help us and vote for us by clicking on the link...

Hi everyone, there is a limited-time draw running for us to be in with a chance ...

Fran_Benson

Partner•2 days ago

30 Replies

Good bye and good luck to you all !

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung cancer that has moved into the bones. The NHS cannot cure only seek containment....

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung ca...

DevonMichael

•23 days ago

95 Replies

Cramps

Has anyone had trouble with leg cramps, especially at night? I am getting bad cramp in both ankle joints & reaching up the shin especially on right leg. It is...

Has anyone had trouble with leg cramps, especially at night? I am getting bad cr...

Claremont2023

•3 days ago

36 Replies

How cortisone/pred works - a new study reports on a potential target to replace steroids

I thought you'd be interested in this article about a study from Germany which has worked out how pred works - and knowing that is the basis for developing...

I thought you'd be interested in this article about a study from Germany which h...

PMRpro

Ambassador•6 days ago

48 Replies

After PMR---energy and strength

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ugly head again. Hubby ceased taking Pred in September 2022 and the...

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ...

piggylovesgolf

•1 month ago

104 Replies

Is it a flare or not??

In August I will have had PMR for 4 years but I still struggle knowing whether I’m flaring or not. I have trouble reducing my Prednisolone dose despite doing...

In August I will have had PMR for 4 years but I still struggle knowing whether I...

Tiggy70

•12 days ago

63 Replies

Finally off Prednisolone and methotrexate

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly after was prescribed Methotrexate. I am pleased to say that finally I have been...

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly ...

Sorop

•16 days ago

64 Replies

Results of brain scan…

Had brain scan last week, doctor just rang, asked how I felt, told him still on 5 mg, surprisingly said if it gives you a quality of life that’s good. Mumbled...

Had brain scan last week, doctor just rang, asked how I felt, told him still on ...

Longtimer

•1 month ago

93 Replies

UPDATE ON CATARACT SURGERY

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much...

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peez...

Missus835

•15 days ago

61 Replies

Weight loss

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary advice found on the forum for around 1 week.Over the past 3 weeks I have lost 10...

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary adv...

Shires123

•1 month ago

86 Replies

fatigue

Hello, all, I’ve only been diagnosed recently. I can medicate the patient n but how do you deal with the fatigue? It comes on quite suddenly. Feels as if my...

Hello, all, I’ve only been diagnosed recently. I can medicate the patient n but ...

Antirrhinum

•4 days ago

31 Replies

Confused

Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginning of December 2023 I had a loss of vision in my left eye, as well as a terrible...

Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginnin...

Azulmarino

•11 days ago

48 Replies

Steroid reduction

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few...

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood ...

kathyrob

•1 hour ago

4 Replies

Stiffness/sore muscles

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 weekly jabs for 40 weeks. That fourth week before the jab I usually experience...

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 ...

LemonZest11

•1 day ago

15 Replies

Sweating

Hello, I have PMR and GCA. I have had a problem with sweating over a year. Today it was 60 degrees and any little physical activity makes me sweat. Before...

Hello, I have PMR and GCA. I have had a problem with sweating over a year. Today...

Plains

•18 days ago

58 Replies

Hello - I'm new to all this.

Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of...

Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg stero...

Positive__

•15 days ago

52 Replies

restless legs

Hi all, Another disturbed night - restless legs driving me insane. I get a horrible tingling sensation in my legs and cannot keep them still. I’m not...

Hi all, Another disturbed night - restless legs driving me insane. I get a horr...

artisam

•3 days ago

24 Replies

How much should I increase Pred?

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred since March of this year. About a week ago I got pain in my knees and shoulders...

I've had PMR since 2016, it's been a rough ride but I've been on 0.50 mg Pred si...

kulina

•4 days ago

25 Replies

The things pred does to blood sugar & weight – oh joy…

Apologies in advance to those who may have read a variation on this as a reply to a thread started by Shires123. When I was diagnosed with PMR nearly 4 years...

Apologies in advance to those who may have read a variation on this as a reply t...

ubaoz

•1 month ago

70 Replies

Alendronic acid query

I’m being pressured to take Alendronic Acid for Osteoporosis but Dad died of AF related issue. Has anyone else had experience of refusing this drug?

I’m being pressured to take Alendronic Acid for Osteoporosis but Dad died of AF ...

PatriMac

•24 days ago

61 Replies

Here is a new idea: "The Patient Knows Best ..."

There are doctors, rheumatologists even, who have confirmed something we often suspect: The patient may well know what they need better than their doctor. And...

There are doctors, rheumatologists even, who have confirmed something we often ...

PMRpro

Ambassador•7 hours ago

7 Replies

Arms in sleeves.

We talked about this problem at my knitting club last weekand all had the same problem with arms getting stuck in the sleeves of coats etc. It all came to a...

We talked about this problem at my knitting club last weekand all had the same p...

Booklist

•2 days ago

17 Replies

Why are my limbs painful after coming off Pred?

I have been on pred since 2018, and finally managed to come off it about 5 weeks ago, after reading all the advice and comments in this forum - I'd never have...

I have been on pred since 2018, and finally managed to come off it about 5 week...

Margot27

•7 days ago

32 Replies

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PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

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