From the heart

9 comments

Celtic Blogger

20 Jan 2013

lynabelle

'From the heart', indeed and will resonate with all, I'm sure - wonderful! Thank you.xx

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ritter

20 Jan 2013

That is beautiful,I used to feel just the same but are now getting to grips with the illness,even though I have lost most of my lovely long hair that is nothing compared to how I feel most days,it is very difficult when you are in constant pain and never too days alike thank goodness is some ways as the days you feel really ill you do not want to live,but the next few days you might feel totally different good luck and do try to keep smiling best wishes ritter.

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Margaret50

21 Jan 2013

Lovely heartfelt words. Well done on taking up knitting - I too went back to knitting after many years (watching TV is difficult as my vision fluctuates) I even joined a knitting forum on the internet which has led to me gaining many new friends and even more support, for which I am grateful. Just hang in there things should start to get better soon.

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floramay

21 Jan 2013

thats what i need somthing to take mind of pain .well done to you though. x

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corralie

21 Jan 2013

Thank you, lynabelle, for your poem which captures, in an art form, our condition so well.
I cant write rhyming poetry, only prose, but your poem sets suffering from pmr down nice and clear.
I shall put a copy on the wall above my pc.
Yesterday I felt really awful. Today is different, lighter, and your poem has put the cherry on the cake for me.
Thanks again. C.

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lynabelle

21 Jan 2013

Thanks everyone for your kind words, today I have been to the doctors and every bone in my body aches, my head , jaw,legs thighs. Had a blood test ready to see the rhemy on 6th February and will ring doctors on Thursday for results of blood and to see if my sedimentation rate has gone up , I am in bed today , and my 2 dogs have not had their walk and it's just not fair, oh well lets hope tomorrow will be better , and if anyone wants a poem about anything at all let me know it keeps my mind occupied x

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wildwoman

21 Jan 2013

Hi there, thanx for your poem, great! I`m an artist and hoping to get back to it as soon as I feel a bit better. I had thought of knitting, but my hands are a problem. I`ve been in bed today too, and my two dogs have lain with me, i do love them, and as they are older they don`t mind missing a walk in the snow! This site is a good place to have a guilt free moan!
A while ago I had a nervous breakdown, another `invisible` condition, and I learnt then to tell myself I have an illness and today I`m doing the best I can under the circumstances. Best wishes.

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lynabelle

21 Jan 2013

Wild woman,
Thanks for your kind words , I will have to learn to appreciate the good days

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pats PMRGCAuk Volunteer

22 Jan 2013

Lynabelle,
Well at least you know your brains still working well - lovely poem and so true for many of us. I felt so like you do now, but now I feel more like my old self. Prednisolone, for all it's side effects does work, but the doses have to be right and the drops have to be ajusted to suit the individual.
I too am knitting again - it's so good for the hands and helps to combat the clumsyness which can be a side effect. Also it helps me to stay really calm.
Pats.

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