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PMRGCAuk

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Has anyone suffered with eye problems after two years of treatment for GCA.?

Well unfortunately I seem to be back to square one. After successfully reducing to 4mgs of pred I reduced to 3 as per my rheumatologist plan and have had eye...

Well unfortunately I seem to be back to square one. After successfully reducing...

Golfers1

•37 minutes ago

3 Replies

Rheumatologist advices no reduction of prednisolone while adrenal glands not working and has issued emergency hydrocortisone kit

I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone in February 2023. But after a flare, I had to raise it to 5mg and have been...

I've had PMR since October 2020 and managed to get down to 2.5mg of prednisolone...

harpsichor

•44 minutes ago

1 Reply

How cortisone/pred works - a new study reports on a potential target to replace steroids

I thought you'd be interested in this article about a study from Germany which has worked out how pred works - and knowing that is the basis for developing...

I thought you'd be interested in this article about a study from Germany which h...

PMRpro

Ambassador•2 hours ago

9 Replies

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Covid vaccination

Hi all - I have just been notified I can have the booster vaccination. Is there any issue with this and GCA or steroids?

Hi all - I have just been notified I can have the booster vaccination. Is there ...

Gladys911

•3 hours ago

Be the first to reply

Lots of Xrays and possible risks

Hi , I had an ablation procedure on my heart in 2005 as I understand it to cauterize 2 additional pathways which treated the SVT I was getting. It was quite...

Hi , I had an ablation procedure on my heart in 2005 as I understand it to caute...

Animalover65

•4 hours ago

2 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•6 hours ago

13 Replies

Spring COVID Booster

Well, here we are again. I have just received an email from NHS regarding the spring booster for Covid which says that according to my medical records I may be...

Well, here we are again. I have just received an email from NHS regarding the sp...

Bayleaf1

•7 hours ago

3 Replies

New diagnosis of RA

I was diagnosed with RA approx 4 wks ago & started taking Methotrexate 15mg for past 2 wks followed by a blood test 4 days ago, my question is, am I supposed...

I was diagnosed with RA approx 4 wks ago & started taking Methotrexate 15mg for ...

StanandDot

•17 hours ago

3 Replies

Noraltavet

I have been using UMARY as a pain suppresent in conjunction with Methotrexate to get off prednisone for my PMR. Has anyone else been using UMARY?

I have been using UMARY as a pain suppresent in conjunction with Methotrexate t...

Veteranvet

•17 hours ago

1 Reply

testing for IL6

Is it possible to test for the IL 6 factor before starting Actemra to see if Actemra will work for you?

Is it possible to test for the IL 6 factor before starting Actemra to see if Act...

Mstiles

•18 hours ago

1 Reply

Why are my limbs painful after coming off Pred?

I have been on pred since 2018, and finally managed to come off it about 5 weeks ago, after reading all the advice and comments in this forum - I'd never have...

I have been on pred since 2018, and finally managed to come off it about 5 week...

Margot27

•20 hours ago

12 Replies

Spring COVID vaccination

Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled...

Hi all, I was told when I was diagnosed with PMR last year that the condition w...

Hedgehogfriend

•21 hours ago

16 Replies

PMR Flare

Dx Feb 2018 20mg Been OK on 3mg since January, testing out 2.5mg occasionally. it's my Nemesis but I'll get there eventually. However on 17th March I started...

Dx Feb 2018 20mg Been OK on 3mg since January, testing out 2.5mg occasionally. i...

GrannyDi

•23 hours ago

4 Replies

GCA question

I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone. My question is, does anyone else with GCA get a pain like feeling in their...

I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone...

Plains

•1 day ago

8 Replies

Can/should I top up for 5 days?

I am tapering slowly and steady on 4.5mg pred for PMR. I feel reasonable but would like to feel better for the next five days for a family occasion ....

I am tapering slowly and steady on 4.5mg pred for PMR. I feel reasonable but wou...

kangaroojohn

•1 day ago

5 Replies

how to use this website

I am new to the group and wanted to bookmark items to revisit them later but am unsure how to go about this. Advise would be appreciated

I am new to the group and wanted to bookmark items to revisit them later but am ...

Golfers1

•1 day ago

2 Replies

Taper

Hi everyone …I'm feeling ok but my weight gain is just crazy I’ve managed to go down 1/2mg of prednisone at a time to now 7-1/2 mg have been on that 6...

Hi everyone …I'm feeling ok but my weight gain is just crazy I’ve managed to g...

Januzzi

•1 day ago

2 Replies

thanks for your advice

If you responded to my questions re sciatica and PMR thank you very much. I am sifting through advice and trying to sort what might get me through this pain....

If you responded to my questions re sciatica and PMR thank you very much. I am s...

Trovatello

•1 day ago

2 Replies

Tapered to 2 mg

I have now been on 2 mg for a week and was expecting the usual fatigue when I start at a new lower level but instead this time I feel better than I have in...

I have now been on 2 mg for a week and was expecting the usual fatigue when I st...

Paulagcl

•1 day ago

12 Replies

Tapering after a fall

I posted a few days ago asking advice about my mum having Spa treatments with GCA.My mum was so looking forward to it and on arriving at hotel there was...

I posted a few days ago asking advice about my mum having Spa treatments with GC...

Buchanan16

•1 day ago

10 Replies

Jaw locking while tapering for GCA

I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest,...

I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the ri...

Bummed24

•1 day ago

8 Replies

GCA diagnosed last February. Biopsy tested positive. No typical symptoms of GCA,2021 just jaw pain at night but I have had PMR since 2021

GCA diagnosed last February. Put on 60mg Prednisone/day for a month. CRP was 67.7 before 60 mg and came down to 12.6 after the treatment. ESR was not an...

GCA diagnosed last February. Put on 60mg Prednisone/day for a month. CRP was 67....

Vikinga

•2 days ago

6 Replies

Low Cortisol Symptoms Hid Lymphoma

Reduction of steroids—Extreme exhaustion, loss of appetite and weight, weakness, dry coughing, numb chin. All but the numb chin could be symptoms of low...

Reduction of steroids—Extreme exhaustion, loss of appetite and weight, weakness,...

Merryfield

•2 days ago

4 Replies

Latest COVID jab.

Am in the early days of PMR and have just been notified I can get a free COVID.jab. I am a bit worried as the only other person I know who has PMR got it the...

Am in the early days of PMR and have just been notified I can get a free COVID.j...

tinlid

•2 days ago

11 Replies

Can you sponsor Mark to help us get an extra £200? (His employer is matching donations up to £1,000)

We have another runner in Sunday's London Marathon who is raising funds for us and awareness of PMR and GCA. Mark's mum has had PMR for five years. His...

We have another runner in Sunday's London Marathon who is raising funds for us a...

Fran_Benson

Partner•2 days ago

4 Replies

A bit confused about when to take various tablets: Pred, EvaCal, Vit K2 Mk7, Vit D3 and a question about Alendronic Acid

GP has now confirmed PMR after blood test results last week and has prescribed EvaCal tablets and Alendronic Acid in addition to Lansoprazole and Prednisolone...

GP has now confirmed PMR after blood test results last week and has prescribed E...

Preposterous

•2 days ago

18 Replies

Do I have symptoms of PMR

good morning all, I was diagnosed 2/1/24 withGCA after having serious sight issues in left eye. I had sensitive scalp, loss of weight and energy and left...

good morning all, I was diagnosed 2/1/24 withGCA after having serious sight iss...

NinnyB

•2 days ago

20 Replies

Energy Boost

Are there any successful of the shelf energy drinks or bars that work? From being an active person pre PMR diagnosis 2 years ago, I now have to take a few...

Are there any successful of the shelf energy drinks or bars that work? From bei...

Golf-1

•2 days ago

15 Replies

care home meeting

Met with the care home today. I am not sure if we’re further forward or not. They are trying to design a protocol for sick day rules but will only take from...

Met with the care home today. I am not sure if we’re further forward or not. The...

RT18

•3 days ago

1 Reply

GCA and Ocular TIA (mini stroke)??

I was diagnosed with GCA four and a half years ago , am on my third relapse and am tapering (now 10mg prednisolone and weekly Actemra). At the onset I had...

I was diagnosed with GCA four and a half years ago , am on my third relapse an...

JulietPotion

•3 days ago

18 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Has anyone suffered with eye problems after two years of treatment for GCA.?

Rheumatologist advices no reduction of prednisolone while adrenal glands not working and has issued emergency hydrocortisone kit

How cortisone/pred works - a new study reports on a potential target to replace steroids

Covid vaccination

Lots of Xrays and possible risks

Cortisol issues

Spring COVID Booster

New diagnosis of RA

Noraltavet

testing for IL6

Why are my limbs painful after coming off Pred?

Spring COVID vaccination

PMR Flare

GCA question

Can/should I top up for 5 days?

how to use this website

Taper

thanks for your advice

Tapered to 2 mg

Tapering after a fall

Jaw locking while tapering for GCA

GCA diagnosed last February. Biopsy tested positive. No typical symptoms of GCA,2021 just jaw pain at night but I have had PMR since 2021

Low Cortisol Symptoms Hid Lymphoma

Latest COVID jab.

Can you sponsor Mark to help us get an extra £200? (His employer is matching donations up to £1,000)

A bit confused about when to take various tablets: Pred, EvaCal, Vit K2 Mk7, Vit D3 and a question about Alendronic Acid

Do I have symptoms of PMR

Energy Boost

care home meeting

GCA and Ocular TIA (mini stroke)??

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