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PMRGCAuk

20,342 members • 38,113 posts

Dexa scan refusal

Hi, this is my first post after being diagnosed with PMR November 2023. The information from everyone on this forum has been invaluable, thank you. I started...

Hi, this is my first post after being diagnosed with PMR November 2023. The inf...

Yorkgirl2

•1 day ago

55 Replies

GCA tapering advice

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very grateful for all the replies I received to my previous post. I was tapering Pred...

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very gratef...

Velofan

•6 days ago

66 Replies

Advice please re steroid dose following fall, facial lacerations, broken nose etc…

Hi all, yesterday I stupidly trotted across a road, my leg gave way and I ended up sliding across on my face, hitting my cheek/nose on the kerb. Been to A&E,...

Hi all, yesterday I stupidly trotted across a road, my leg gave way and I ended ...

Tribie

•3 days ago

41 Replies

Should I up my dose?

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a 350km off road ride in Wessex. I’m currently relatively symptom free but wonder...

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a ...

Mervetheswerve

•6 days ago

57 Replies

STUCK IN A PRED RUT

I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told...

I first posted in 2018.. Since then I have managed to reduce from 20mg with pai...

Pmrmolly2018

•2 days ago

34 Replies

painful shoulders after dead slow taper to 2mg.

I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg prednisone on a slow taper taking a month for 0.25mg drop. I also take...

I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg pr...

HelenDaisy

•3 hours ago

7 Replies

Stereotypes, getting older and illness

Hi, I just had a thought about the psychological effects of experiencing a chronic illness. When I experienced 3 months of undiagnosed PMR 2 years ago the...

Hi, I just had a thought about the psychological effects of experiencing a chron...

Animalover65

•8 days ago

57 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•26 days ago

100 Replies

Pred reduction and feelings of low blood sugar

'Morning everyone! I am using DL's slow taper and have reduced to the dose which has caused flares in the past - between 5mg and 7mg. I have been on 6mg for...

'Morning everyone! I am using DL's slow taper and have reduced to the dose whic...

Miserere

•12 days ago

67 Replies

covid plan

hello all. Further to my message yesterday about cold v flare, I have just tested positive for COVID so I am after advice. Rest, obviously but I am planning to...

hello all. Further to my message yesterday about cold v flare, I have just teste...

marionofnorwich

•4 hours ago

8 Replies

Heebeejeebies on low pred??

I have been down to 1mg of prednisone since January and toggling back and forth between 1 and 1/2 mg since April. But I feel mentally out of whack. Paranoid....

I have been down to 1mg of prednisone since January and toggling back and forth ...

Greytree

•12 days ago

61 Replies

Prednisone vs Acterma with steroid induced diabetes. Really terrified

Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to...

Update: April 2024 was scheduled for eye surgery for Strabismus which was cancel...

JanetGarrettN

•11 days ago

58 Replies

Coopersmummy7

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long...

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and f...

Angelsmummy

•23 days ago

82 Replies

High dose Pred side effects

Hi I’m afraid I need some advice again please. Having been diagnosed with PMR over 2 years ago, I was down to 4mg Pred although looking back I was in a lot of...

Hi I’m afraid I need some advice again please. Having been diagnosed with PMR o...

Apple6

•1 day ago

20 Replies

Is it back? 🙈

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar...

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. ....

Croft9232

•5 days ago

36 Replies

Methotrexate and sun exposure

Hi I'm looking for a bit of advice. I'm going to Croatia on Thursday for a pre-surgery holiday and have just been reading about the link between Methotrexate...

Hi I'm looking for a bit of advice. I'm going to Croatia on Thursday for a pre-...

Dance62

•1 hour ago

4 Replies

To TCZ or not to TCZ??

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheumy is having a n ENRAD meeting next week to discuss my case and if I can have...

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheu...

Angelsmummy

•4 days ago

29 Replies

Low carbs

Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I...

Im 2 years in on my PMR journey with a really bad flare last July. Which took m...

LilyRose19

•9 hours ago

9 Replies

Dexa Scan Results

"This patient has low bone mass." No surprise really. I know what to expect or do I? I am tapering from 10mg yet again and down to 7mg Quite a few...

"This patient has low bone mass." No surprise really. I know what to expect ...

discoballs

•24 hours ago

14 Replies

Skin problems at low dose

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However...

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though at...

Waves2

•14 days ago

51 Replies

Tapering with PMR, Osteoporosis, Gall Bladder (new) and upcoming Cataract Surgery (second eye)

I feel like crap. I don't feel I should be tapering anything at this point. Was just in hospital for 3 days end of April. Gall bladder is shot. I've done...

I feel like crap. I don't feel I should be tapering anything at this point. Was ...

Missus835

•2 days ago

19 Replies

A&E AGAIN!!

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on...

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks...

Kendrew

•20 days ago

58 Replies

Another injury, wrist this time

Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is...

Just the other day, for unknown reason, memory of an old acquaintance popped int...

HeronNS

•16 days ago

52 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•27 days ago

67 Replies

Turmeric Drink Shots

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... I had my first one at about noon and the aching and pains have gone. Just that...

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... ...

discoballs

•21 days ago

59 Replies

Maybe not PMR update 5 years on

Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in...

Good morning after 5 years next month on steroids with a PMR diagnosis I am head...

Pawscat11

•3 days ago

23 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•1 month ago

71 Replies

Methotrexate and skin sensitivity to sun.

There was a discussion on this last year and I am after some advice.I have been on MTX for 2 years and until last September I could be in the sun with no...

There was a discussion on this last year and I am after some advice.I have been ...

Oxfordboy2

•4 hours ago

5 Replies

blood sugar

I was on 25mg pred about to drop to 30 when vision became blurred put up to 30 after blood test showed I needed towas told to do blood sugar level and its 9.2...

I was on 25mg pred about to drop to 30 when vision became blurred put up to 30 a...

Alliekat65

•7 hours ago

7 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•28 days ago

64 Replies

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